The Gauchers Association is the only registered UK charity providing support to individuals and families affected by Gaucher Disease.

We act as the centre point for the Gaucher community, working alongside medical professionals, scientists and the pharmaceutical industry to meet our aims:

  1. To support those individuals and their families affected by Gaucher Disease through our patient and family advocacy service.
  2. To provide information to patients and families regarding all aspects of Gaucher Disease.
  3. To advocate on behalf of patients and families to ensure access to appropriate treatment and specialised care through the Centres of Excellence in the UK.
  4. To promote research into the causes, effects and treatments for Gaucher Disease.
  5. To raise awareness and promote education in the medical profession of Gaucher Disease to improve diagnosis and the impact of the condition on patients and families’ lives.
Our history

Since 1991, the Gauchers Association has been active in promoting awareness and research, providing general and specific information - including keeping our members up to date on the latest research developments, and perhaps most importantly, establishing a support network for those affected by Gaucher Disease.

We completed the summer walk !!!!!! It was an amazing day and an amazing amount raised for the Gauchers Association. Thank you for the treats you sent us, we wore our Gaucher T-shirts with pride .
Sarah Mancini, walking in memory of her cousin who was a type 1 Gaucher patient.
Join Us

Find out the ways that you can get involved with The Gauchers Association.

Board of Directors and Team

We are hugely grateful to have a dedicated board of directors and support team

Contact us

If you need any help, advice or support with anything please get in touch with us