Paediatric Gaucher patients are treated at:

Great Ormond Street Hospital, London

Clinical Nurse Specialists:

Megan Keating – Megan.Keating@gosh.nhs.uk
Mathilda Antonini – Mathilda.antonini@gosh.nhs.uk
Rebecca Whiteley – Rebecca.Whiteley@gosh.nhs.uk

Contact Details:

Metabolic Office, Level 5
Southwood Building
Great Ormond Street Hospital NHS Trust
Great Ormond Street
London WC1N 3JH

Tel: 020 7405 9200
Secretaries: Jennifer Kohn – ext: 8331 – jennifer.kohn@gosh.nhs.uk
Annette Wells – ext: 8519 – Annette.wells@gosh.nhs.uk
Clinical Nurse Specialists – ext: 0366 / 8721

 

The Royal Manchester Children’s Hospital, Manchester

Clinical Nurse Specialists:

Rebekah Hutton, Gaucher Clinical Nurse Specialist
Contact number: 0161 701 0737
Email: rebekah.hutton@mft.nhs.uk

Clare Hamilton-Kay, Matron of the Willink Unit

Email: clare.hamilton-kay@mft.nhs.uk

Contact Details:

Willink Biochemical and Genetics Unit
Royal Manchester Childrens Hospital/ St Mary’s Hospital, Oxford Road, Manchester, M13 9WL
Contact number- 0161 701 2137

Birmingham Children’s Hospital, Birmingham

Clinical Nurse Specialist:

Louise Ball: louise.ball20@nhs.net

Contact Details:

Inherited Metabolic Disorders
Birmingham Children’s Hospital
Steelhouse Lane
Birmingham
B4 6NH

Main switchboard – 0121 333 9999

Adult Gaucher patients are treated at:

National Hospital, London

Clinical Nurse Specialists:

Ana Amado Fondo – Lead metabolic CNS
Anna Katherina Cuarentas -metabolic CNS
Kirsty White – metabolic CNS
Email: uclh.metabolic.unit.nursing.team@nhs.net
Phone numbers: 0203 448 3603/3272

Contact Details:

Charles Dent Metabolic Unit
Box 92
National Hospital for Neurology and Neurosurgery
Queen Square
London
WC1N 3BG

The Royal Free Hospital, London

Clinical Nurse Specialists:

Linda Richfield – LSDU lead specialist nurse practitioner
E-mail: linda.richfield@nhs.net

Alan Milligan – LSDU senior specialist nurse practitioner
E-mail: alanmilligan@nhs.net

Juniebel Cooke – LSDU specialist nurse practitioner E-mail : juniebel.cooke@nhs.net

Anna Saranillo – LSDU specialist nurse practitioner
E-mail: anna.fernandez-saranillo@nhs.net

Contact Details:

The Lysosomal Storage Disorders Unit
The Royal Free Hospital
Pond St.
London NW3 2QG
Direct line and fax 0207 472 6409

 

Addenbrooke’s Hospital, Cambridge

Clinical Nurse Specialist:

Liz Morris – liz.morris3@nhs.net>

Contact Details:

Lysosomal Disorders Unit, Box 135, Cambridge University Hospitals, Cambridge Biomedical Campus Hills Road, Cambridge, CB2 0QQ

01223 274634

 

New Queen Elizabeth Hospital, Birmingham

Clinical Nurse Specialists:

Sarah Steeds and Sandra Munyoro
Telephone: 0121 371 6776
Email: imdnurses@uhb.nhs.uk

Contact Details:

Mindelsohn Way
Edgbaston
Birmingham
B15 2GW

 

Salford Royal Hospital, Manchester

Clinical Nurse Specialists:

Mairead Jones –  Mairead.Jones@nca.nhs.uk

Janet Gorton – Janet.Gorton@nca.nhs.uk

Daniel Hand – Daniel.Hand@nca.nhs.uk

Contact Details:

The Mark Holland Metabolic Unit

NW2, 2nd Floor

Ladywell Building

Salford Royal NHS Foundation Trust

Stott Lane

Salford

M6 8HD

Tel. 0161 206 4365  fax 0161 206 4036
Clinical enquiry line: 0161 206 1899

International Gaucher Alliance

The International Gaucher Alliance (IGA) is the voice of Gaucher Disease patient groups and Gaucher patients and their caregivers worldwide.

About Us

The Gauchers Association is the only registered UK charity providing support to individuals and families affected by Gaucher Disease.

Contact us

If you need any help, advice or support with anything please get in touch with us